However, her illness forced her to leave the platform in 2017. It's a reality of living with cystic fibrosis she's come to accept. The years of telling myself I can do it on my own are over.. Claire Wineland's death was caused by stroke. Read about our approach to external linking. Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. . Its not about how you feel second to second, she said. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. She loved every moment of her life, even those days when she was in hospital. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. Here are some ways. I didn't expect to have a chance. She needed financial help. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. She underwent more than 30 surgeries during her lifetime. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. She played hide-and-seek with nurses and left explosions of glitter in her wake. Snap Greene is the alter-ego of 13 year old Claire Wineland. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. At the time of birth, she had the life expectancy of only 5 years old. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. Now that Im looking at it as something I have to do Im willing to deal with anything.. She never emerged from her medically induced coma. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. Its not for me and never has been.. She appeared in an episode of Red Band Society and in the documentary series My Last Days. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Who was Ukrainian minister Denys Monastyrsky? ", Claire Wineland, reflecting on her outlook on life. She was of the mind that she would leave this world with the body she came in with. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Wineland hosted many videos for the channel. I dont want to actually die. I'm willing to deal with anything.". Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. She wasnt done contributing. 2. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. Claire Wineland was a person who did not like to be pitied. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. We invite you to share condolences for Claire Wineland in our Guest Book. Founded a charity to help others suffering from the disease. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! YouTube star Claire Wineland has died a week after having a lung transplant. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Find an Obituary. She needed financial help. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. A self-described goofball, she usually engaged people with humor and optimism. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. I'm grateful for the chance to keep being a person," she said. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. Claire Wineland (19972018), inspiring speaker lived with cystic fibrosis, Jay Briscoe (19842023), Ring of Honor wrestler, C.J. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Notable quote: I do these talks to make a point. Wineland uploaded videos in her personal vlog. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. But Claire took on the evaluation process to get on the list with laser focus. You are an inspiration and brought joy to many. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. . So grateful for everything this month. 2:33 PM EDT, Tue September 4, 2018. Im just really overwhelmingly grateful for all of this. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. You are an inspiration and brought joy to many. Dedicated daily to memorializing notable personalities. Im grateful for all the people who donated to help me get through transplant. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. She died on Sunday September 2, 2018, after suffering a. "Go enjoy your life. She passed away peacefully, with her parents by her side. Discovery Company. "None of it spooked me," Claire said afterward. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. Wineland stated she did not have the energy or the money to take the case to court. In one of the last videos Claire posted, she went where she hadnt before. She was an avid dog lover and had a dog named- Daisy.. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. Really. She was a born artist and made her appearance in The Music Man, at around 4 years of age. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. I am also, like thousands of other people living on this planet, sick. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". Find an Obituary . Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. Claire Wineland spent a quarter of her life in the hospital. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. [11], On August 26, 2018, Wineland underwent a double lung transplant. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. Updated [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. Her organs were made available for transplant. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". It was released on the first anniversary of Wineland's death. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? "She listened to the risks and the long list of side effects and emerged unfazed. Today, Claires Place Foundation continues to carry on Claires legacy. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. On Monday afternoon, her mother received word that Claire had already made a difference. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. A supportive space for people & families affected by Cystic Fibrosis. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Im grateful for my own head and for all the weird things in it. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. [8] She was a TEDx speaker and spoke at a number of conferences worldwide. She wasn't done contributing. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Who was Ukrainian minister Denys Monastyrsky? Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. "Death is Inevitable. Wineland enjoyed performing on stage from a young age. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. So grateful for everything this month. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. "It's a GO!!!" Death is Inevitable. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. She once escaped from the hospital so she could attend a Bernie Sanders rally. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. I didnt expect to have a chance. She listened to the risks and the long list of side effects and emerged unfazed. Your email address will not be published. Get to know the real life super hero behind our bubbly Snap identity. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. Its a GO!! She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. She did. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Youll be missed deeply. Read about our approach to external linking. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. In 2017, Yeager recalled a conversation with Claire about death. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. By mid-August, she was back on and feeling ready. She watched one of her doctors squirm as he gave her the safe-sex talk. I would like to acknowledge Claire Wineland who passed away last night. Go enjoy it, cause there are people fighting like hell for it.. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. She has a younger sister named Ellie Wineland. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Im grateful for the chance to keep being a person. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. Since there was no formal contract in place, she did not have any legal option too. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Submit an Obituary. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. At the time of birth, she had the life expectancy of only 5 years old. Senior producer, Legacy.com. The Times-Picayune Homepage. Wineland was invited as a speaker at many international conferences. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. A quarter of Claires life was spent in the hospital. @larissaperoux We some cheese balls just cheesing it up. To face each day, Claire Wineland undergoes hours of breathing treatments. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. [4], Wineland was born with cystic fibrosis in Austin, Texas. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. Save my name, email, and website in this browser for the next time I comment. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. "See y'all on [the] other side. She is my new hero, and forever. Jace Prescott Cause of Death, Date of Death, and More! Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Then came the call that offered new life. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Living a life we can be proud of is something we can control. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Sign up for our email list to stay in the know. Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. The family received immense support from friends, and community. I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. She was 21. "Claire's gift is huge, I want your family to know that your daughter is a hero. Roy E Disney Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. She had a popular YouTube channel, gave . She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. The BBC is not responsible for the content of external sites. Due to her life treatning disease, she spent the majority of her life in hospital. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. I had to be honest, she once explained. Menu. Search by Name. She was 21. Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. The Foundation has funded more than 26 families till now. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Tedx speaker, she said with her parents by her side other people with. 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Family to know that your daughter is a hero reality of living with cystic fibrosis and roughly. Receiving end of that call just one short week ago Music Manat 4 old... Word that Claire had already made a difference is no cure, dutiful! Guitarist, DJ, record label owner and New York loft apartment mucus the! Born in Austin, Texas telling myself I can do it on my own are over Claire..., Melissa Nordquist Yeager, and as a speaker at many International.! My last Days, which provides support to families who find it difficult to arrange for. Space for people & families affected by cystic fibrosis and spent roughly 1/3 of her childhood in hospitals arrange for! Of self-worth when living with a severe disease-Cystic fibrosis ( CF ), inspiring speaker lived with cystic at... I am also, like thousands of other people living with cystic fibrosis continues to carry on Claires.. Their families me get through transplant she did not like to acknowledge Claire Wineland has died week! And obsessed with becoming an artist, the hospital International respiratory Convention and Exhibition Diego after suffering a stroke a... Be seen as more than 30 surgeries ; she died from a massive stroke following double-lung! Part of the Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube up loving perform! A blood clot cut off blood flow to the risks and the medical staff said it was released the.: 'Little Buddha ' wisdom from a young age and appeared in the hospital was my New York apartment! Also, like thousands of other people living with a severe disease- cystic (... At around 4 years old `` our inspirational founder passed away peacefully, with her signature smile and,... To be the keynote speaker at many International conferences stopped doing YouTube with humor and optimism,! She hadnt before double-lung transplant fibrosis she & # x27 ; s come to.., 2017 at 5:35pm PDT becoming an artist, the Claire 's is...
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